karenulijohn

Our prayers have been answered today.  The oncology hematologist told us that all of the recent scans and tests were negative for any cancer.  He confirmed that the MRI showed a brain.  I guess that is “doctor humor.”  Seriously, he said there were no definitive signs of any cancer.  After a brief, routine physical, he signed the paperwork confirming that Harvey is eligible for the study.  A few minutes later, the study coordinator, Kirsten came to discuss the next steps.  His treatment will begin on Monday, but we don’t have a time as yet.  She left us to put Harvey’s name into the “randomization process” for the study.  Well, we won the lottery there as well.  Harvey has been selected for the low dose, Ipilimumab treatment regime.  Initially, he will be given an intravenous infusion once every 21 days for a total of four doses.  After that, the maintenance regimen will consist of an infusion every twelve weeks, beginning at week 24, for a maximum of four doses.  Fifty percent of participants have some side effects, but the percentage of serious side effects is quite low.  The most common side effects include inflammatory bowel, skin rashes, and hormone problems.

Monday will undoubtedly be a long day.  We have been told to plan to be at the infusion center for four to five hours.  The first infusion comes with a hydration treatment and a significant blood-letting.  I believe they will take approximately 6 – 8 vials of blood.  Kristen told Harvey to begin drinking (water) in large quantities at least two days before the treatment.  He is to bring snacks and drinks (water), books, and magazines in order to pass the time.  However, they will give him a sedative, and knowing him, he will probably sleep through most of it.  I guess I’ll just have to go to the mall while he naps.

This is the outcome we have both been praying for, and we are grateful for all of the good wishes, thoughts and prayers from our friends and family.  Thank you all for your support and love.  It means so much to us.